PAD688 - Research & Program Evaluation

Traumatic Brain Injury Organizations

-Common Data-Gathering Framework-

Analogous Organizations

• Other TBI Clubhouses (same issue and format)

  • http://www.dreamscape.com/cafeplus/ Cafe Plus - TBI Cafe

• Other "Clubhouses" (same format)

• Other TBI organizations (same issue)

  • http://www.headinjury.com/ Brain Injury Resource Center

  • http://www.biausa.org/ Brain Injury Association

  • http://www.upstate.edu/library/tbi/ TBI Coalition of Central NY

  • http://www.upstate.edu/library/tbi/section-h.htm Basic Facts about TBI incidence

  • http://www.tbindc.org/ National TBI Database

  • http://www.tbi-sci.org/tbires.html TBI outcomes measures
    • http://tbims.org/combi/ Center for Outcome Measurement in Brain Injury
    • http://tbims.org/combi/list.html List of scales

Accrediting and Funding Bodies

• International Standards for Clubhouse Programs, International Center for Clubhouse Development

Research

-Academic Studies

• New Directions in Vocational Rehabilitation, Journal of Rehabilitation (1999)
• Quality of Life - Expanding the Scope of Clinical Measures, Journal of Consulting and Clinical Psychology (1999)
• Detailed Information on Various QOL Indicators
• http://www.kmrrec.org/KM/nnjtbis2002/pdf/tbi_predictors2002.pdf Predictors of Disability Following TBI

-Program Evaluations

• An Experimental Comparison of PACT and Clubhouse, Massachusetts Employment Intervention Demonstration Project

General Public and Nonprofit Management Sites

General Health Care Sites (general "issue" organizations)

• http://www.ahrq.gov/clinic/epcindex.htm#neurology Best practices in Neurology

• Family Caregiver Alliance "Incidence and Prevalence of the Major Causes of Adult-Onset Brain Impairment" http://www.caregiver.org/caregiver/jsp/home.jsp
  • learned links: NIH, Census

Government Sites

• http://www.cdc.gov/doc.do/id/0900f3ec8001011c "Traumatic Brain Injury in the United States: A Report to Congress"

• http://www.cdc.gov/ncipc/osp/data.htm National Center for Injury Prevention and Control

• http://www.cdc.gov/ncipc/wisqars/default.htm WISQARS

• National Institute of Neurological Disorders and Stroke

  • http://www.ninds.nih.gov/health_and_medical/disorders/tbi_doc.htm NINDS TBI Information Page